EPICE-PT - Effective Perinatal Intensive Care in Europe
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The EPICE project explored the use of evidence based practices for the care of very preterm infants in 19 regions from 11 EU Member States. These regions cover more than 750000 deliveries per year, 550 units of obstetrics, 250 units of neonatology and about 10,000 very preterm infants.
Very preterm infants born before 32 weeks of gestation represent 1 to 2% of all births; these infants face higher risks of mortality and long-term neurodevelopmental impairment than infants born at term.
The EPICE project aimed to improve the survival and long-term health of preterm infants by ensuring that medical knowledge is translated into effective perinatal care. Promoting the use of evidence-based guidelines is a promising and cost-effective approach for improving care and for optimizing health outcomes for these infants. Longer term follow up of this cohort is continuing in the SHIPS study.
Very preterm infants born before 32 weeks of gestation represent 1 to 2% of all births; these infants face higher risks of mortality and long-term neurodevelopmental impairment than infants born at term.
The EPICE project aimed to improve the survival and long-term health of preterm infants by ensuring that medical knowledge is translated into effective perinatal care. Promoting the use of evidence-based guidelines is a promising and cost-effective approach for improving care and for optimizing health outcomes for these infants. Longer term follow up of this cohort is continuing in the SHIPS study.
Visit EPICE-PT
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Overview
- Acronym
- EPICE-PT
- Start Year
- 2011
- Follow Up Is Ongoing
- Year of Most Recent Data Collection
- 2019
- New Data Collection planned?
- Yes
- Funding
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EPICE: European Union Seventh Framework Programme (FP7/2007‐2013) Grant Number: 259882
SHIPS: European Union Seventh Framework Programme (FP7/2015‐2018). Grant Number: 633724
Access
Access to external researchers or third parties neither provided nor foreseen.
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Supplementary Information
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Perinatal data and some follow-up data were collected in 10 of the regions in 2003 as part of the MOSAIC study forming the basis for this study.
Study Design
- Study design
- Cohort
- Number of Data Collection Events
- 6
- Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births)
- 974
- Supplementary information about number of participants
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724 livebirths of 974 preterm births.
607 discharged alive
544 consented for follow up.
Marker Paper
Barros, H., et. al. Effective perinatal intensive care in europe (EPICE): Descrição do Projeto e primeiros resultados em Portugal. Arquivos de Medicina, 28(6), 183-190
Timeline
Population
The EPICE-PT cohort comprised all live and still born VPT infants in two regions of Portugal. All public maternity and neonatal intensive care units in Lisbon and Tagus Valley Region (8 units) and Northern Region (9 units), plus 3 private units within the Lisbon and Tagus Valley Region were included. Units with 10 or more admissions of very preterm newborns, in the first 48 hours postpartum were eligible to take part in the study.
Selection Criteria
- Countries
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- Portugal
- Geographical Area
- Northern Region, Lisbon and Tagus Valley Region
- VPT/VLBW Group Inclusion Criteria
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All live and still births between 22 + 0 and 31 + 6 weeks of gestation.
Birth occurred between 1st June 2011 and 31st May 2012. - Control Group Inclusion Criteria
- n/a
- VPT/VLBW Group Exclusion Criteria
- none
- Control Group Exclusion Criteria
- n/a
Data Collection Events
# | Name | Description | Start | End |
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0 |
Perinatal Assessment
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Perinatal data were collected from obstetric and neonatal medical records using a pretested standardised questionnaire as part of the main EPICE study. Maternal and infant health ... |
2011 | 2012 |
1 |
1 Year Follow up
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The 1 year data collection involved a Portuguese sub-cohort of the EPICE population consisting of all infants discharged alive from NICU whose parents provided informed consent to take part in the ... | 2012 | 2013 |
2 |
2 Year Follow Up
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EPICE participants were followed up at 2 years of age via a postal questionnaire completed by parents. This follow up involved all EPICE regions. Data were collected on neurodevelopment ... |
2013 | 2014 |
3 |
3 Year Follow Up
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At 3 years of age, participants from the two Portuguese regions enrolled in the EPICE cohort were followed up. A structured questionnaire was completed by the parents of the participant ... |
2014 | 2015 |
4 |
4 Year Follow Up
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At 4 years of age, participants from the two Portuguese regions enrolled in the EPICE cohort were followed up. The parent/guardian of the participant completed a questionnaire via a telephone ... | 2015 | 2016 |
5 |
5 Year Follow Up
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The full EPICE cohort was assessed as part of the Screening to Improve Health in Very Preterm Infants in Europe (SHIPS) research project, which builds on EPICE and continues the follow up of the ... | 2016 | 2019 |