There are two types of studies presented here:
● An individual study - any epidemiological study (e.g. cohort, case control, cross sectional, etc.) conducted to better understand the distribution and determinants of health and disease.
● A harmonisation study - a research project harmonizing data across individual studies to answer specific research questions.
Studies
| Acronym | Name | Description | Type |
|---|---|---|---|
| ACTION | Accesso alle Cure e Terapie Intensive Ostetrico Neonatali (Access to Obstetrical and Neonatal Intensive Care) | The ACTION cohort is a prospective area-based cohort started in 2003 in six Italian regions, ... | Individual |
| AYLS | Arvo Ylppö Longitudinal Study | The AYLS is the Finnish arm of the Bavarian-Finnish Longitudinal Study. The original ... | Individual |
| BEST/BLS | Bavarian Longitudinal Study Cohort | Phase I (1984-1990) Four assessments (1985-1990) were carried out daily during the neonatal ... |
Individual |
| DNBC | Danish National Birth Cohort / Better Health in Generations | Exposures in the period from conception to early childhood - including fetal growth, cell ... | Individual |
| EFGR in very preterm infants | Extreme Fetal Growth Restriction in very preterm infants | - Describe the prevalence and risk factors of infants with extremely severe fetal growth ... | Harmonisation |
| UA_EPIBEL | Antwerp University EPIBEL | The original aim of the EPIBEL study was to determine mortality and morbidity at discharge from ... | Individual |
| EPICE | Effective Perinatal Intensive Care In Europe | The EPICE project explored the use of evidence based practices for the care of very preterm ... | Individual |
| EPICE-PT | Effective Perinatal Intensive Care in Europe - Portugal | As part of the "Effective Perinatal Intensive Care in Europe" (EPICE) project, this cohort was ... | Individual |
| EPICure | EPICure | The aim of the EPICure Study is to determine survival rates and long term health, developmental, ... | Individual |
| EPICure 2 | EPICure 2 | EPICure 2 is a population study of health and development after birth before 27 weeks of ... | Individual |
| EPIPAGE 1 | Étude épidémiologique sur les petits âges gestationnels | The EPIPAGE 1 study aimed to assess the outcome of very preterm (VPT) babies, to identify early ... | Individual |
| EPIPAGE 2 | Étude épidémiologique sur les petits âges gestationnels | The EPIPAGE 2 study aims: 1. to describe short- and long-term outcomes in very and moderately ... | Individual |
| EPT RECAP | A comparative analysis of extremely preterm birth cohorts in Europe participating in the RECAP consortium | #### Objectives: 1. Identify similarities and differences between European birth cohorts that ... | Harmonisation |
| EST 2002-2003 | EST 2002-2003 ELBWI, <29GW at 5y | The aim of the study was to follow-up a population-based cohort of Extremely Low Birth Weight ... | Individual |
| EST 2007-2008 | Very low gestational age infants born in Estonia in 2007-2008 | The aims of the conducted studies were to describe short-term and long-term outcome and health ... | Individual |
| ESTER | Preterm Birth and Early Life Programming of Adult Health and Disease | The ESTER study focuses on preterm birth at any gestational age and maternal hypertension in ... | Individual |
| ETFOL | Treatment of extremely preterm infants: parents attitudes | The ETFOL study is a prospective national follow up study of extremely preterm (EPT) babies born ... | Individual |
| EXPRESS | Extremely Preterm Infants in Sweden Study | The EXPRESS Study (Extremely Preterm Infants in Sweden Study) is comprised of a group of ... | Individual |
| GNN | German Neonatal Network | The German Neonatal Network (GNN) started patient enrolment on January the 1st 2009. The network ... | Individual |
| HAPP-e | Health of Adult People born Preterm – an e-cohort study | The overall objective of this study was to assess the feasibility of recruiting and following up ... | Individual |
| HeSVA | Helsinki Study of Very Low Birth Weight Adults | Very low birth weight (VLBW) infants born 1978 – 1985 were followed-up to study survival and ... | Individual |
| NTNU LBW Life | NTNU Low Birth Weight in a Lifetime Perspective Study | The NTNU Low Birth Weight in a Lifetime Perspective Study (NTNU LBW Life) comprises a group of ... | Individual |
| PEP | Project Extreme Prematurity | The purpose of Project Extreme Prematurity (PEP) is to study short- and long-term health and ... | Individual |
| PIPARI | Development and Functioning of Very Low Birth Weight Infants from Infancy to School Age | PIPARI project (Development and Functioning of Very Low Birth Weight Infants from Infancy to ... | Individual |
| POPS | Project On Preterm and Small for gestational age infants | The original POPS-cohort is a multi-center cohort of 1338 very preterm (<32 completed weeks of ... | Individual |
| RECAP-Registers | RECAP Preterm Nordic Registers | Data on all births in Norway, Sweden, Finland, and Denmark is recorded within Medical Birth ... | Individual |
| WP9_Harmonised adult outcomes | Adult outcomes of Very Preterm (VPT) and/or Very Low Birth Weight (VLBW) of European cohorts participating in the RECAP Preterm consortium | #### Objectives: 1. To compare major outcomes, such as physical and mental health, quality of ... | Harmonisation |
ACTION
Accesso alle Cure e Terapie Intensive Ostetrico Neonatali (Access to Obstetrical and Neonatal Intensive Care)
The ACTION cohort is a prospective area-based cohort started in 2003 in six Italian regions, five of them are eligible for inclusion in the RECAP collaboration (i.e. at least 1 follow-up wave). ...
Read more
Study design:
Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births):
2493
AYLS
Arvo Ylppö Longitudinal Study
The AYLS is the Finnish arm of the Bavarian-Finnish Longitudinal Study. The original participants in the AYLS study were 1535 infants admitted to neonatal wards in obstetric units or transferred ...
Read more
Study design:
Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births):
1535
BEST/BLS
Bavarian Longitudinal Study Cohort
Phase I (1984-1990)
Four assessments (1985-1990) were carried out daily during the neonatal period, at discharge from hospital, at 5 months and 20 months (corrected for prematurity) and at 56 ...
Four assessments (1985-1990) were carried out daily during the neonatal period, at discharge from hospital, at 5 months and 20 months (corrected for prematurity) and at 56 ...
Read more
Study design:
Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births):
682
DNBC
Danish National Birth Cohort / Better Health in Generations
Exposures in the period from conception to early childhood - including fetal growth, cell division, and organ functioning - may have long-lasting impact on health and disease susceptibility. To ...
Read more
Study design:
Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births):
96834
EFGR in very preterm infants
Extreme Fetal Growth Restriction in very preterm infants
- Describe the prevalence and risk factors of infants with extremely severe fetal growth restriction, using several definitions (weight thresholds, mortality risks, clinical opinion).
- ...
UA_EPIBEL
Antwerp University EPIBEL
The original aim of the EPIBEL study was to determine mortality and morbidity at discharge from the hospital of a large population-based cohort of infants who were born at <27 weeks’ gestation. ...
Read more
Study design:
Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births):
525
EPICE
Effective Perinatal Intensive Care In Europe
The EPICE project explored the use of evidence based practices for the care of very preterm infants in 19 regions from 11 EU Member States. Very preterm infants born before 32 weeks of gestation ...
Read more
Study design:
Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births):
10329
EPICE-PT
Effective Perinatal Intensive Care in Europe - Portugal
As part of the "Effective Perinatal Intensive Care in Europe" (EPICE) project, this cohort was set up to investigate the use of evidence-based interventions for prenatal and postnatal care of ...
Read more
Study design:
Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births):
974
Number of term-born control births included in cohort (live & still births):
0
EPICure
EPICure
The aim of the EPICure Study is to determine survival rates and long term health, developmental, educational and psychological outcomes across the lifespan following birth at 25 weeks of gestation ...
Read more
Study design:
Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births):
4004
EPICure 2
EPICure 2
EPICure 2 is a population study of health and development after birth before 27 weeks of gestation during 2006. Evaluations were carried out at discharge (Clinical Data), at 3 years and we have ...
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Study design:
Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births):
3133
EPIPAGE 1
Étude épidémiologique sur les petits âges gestationnels
The EPIPAGE 1 study aimed to assess the outcome of very preterm (VPT) babies, to identify early predictors of health problems and developmental disorders, and to assess the impact of the ...
Read more
Study design:
Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births):
3581
EPIPAGE 2
Étude épidémiologique sur les petits âges gestationnels
The EPIPAGE 2 study aims:
1. to describe short- and long-term outcomes in very and moderately preterm babies and their families;
2. to study changes in medical practices and organization of care ...
Read more
Study design:
Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births):
5170
EPT RECAP
A comparative analysis of extremely preterm birth cohorts in Europe participating in the RECAP consortium
#### Objectives:
1. Identify similarities and differences between European birth cohorts that are potentially important in the determination of baseline populations used in perinatal epidemiology ...
EST 2002-2003
EST 2002-2003 ELBWI, <29GW at 5y
The aim of the study was to follow-up a population-based cohort of Extremely Low Birth Weight (ELBW), extremely low gestational age children at 5 years. No follow-up studies had been carried out ...
Read more
Study design:
Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births):
80
EST 2007-2008
Very low gestational age infants born in Estonia in 2007-2008
The aims of the conducted studies were to describe short-term and long-term outcome and health costs for very preterm (VPT) infants in Estonia, to identify risk factors for adverse outcome, and to ...
Read more
Study design:
Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births):
360
ESTER
Preterm Birth and Early Life Programming of Adult Health and Disease
The ESTER study focuses on preterm birth at any gestational age and maternal hypertension in pregnancy and gestational diabetes as exposures. The study comprises 1161 subjects born in the two ...
Read more
Study design:
Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births):
397
ETFOL
Treatment of extremely preterm infants: parents attitudes
The ETFOL study is a prospective national follow up study of extremely preterm (EPT) babies born in 1994 – 1995 with birth weight below 1000 g or gestational age less than 28 weeks in Denmark. ...
Read more
Study design:
Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births):
477
EXPRESS
Extremely Preterm Infants in Sweden Study
The EXPRESS Study (Extremely Preterm Infants in Sweden Study) is comprised of a group of liveborn and stillborn extremely preterm (EPT) infants born at a gestational age of <27 weeks, recruited ...
Read more
Study design:
Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births):
1011
GNN
German Neonatal Network
The German Neonatal Network (GNN) started patient enrolment on January the 1st 2009. The network is focussed on the long-term effects of genetic, clinical and social risk factors, the influence of ...
Read more
Study design:
Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births):
15825
HAPP-e
Health of Adult People born Preterm – an e-cohort study
The overall objective of this study was to assess the feasibility of recruiting and following up an e-cohort of adults born preterm to better understand the consequences of prematurity in ...
HeSVA
Helsinki Study of Very Low Birth Weight Adults
Very low birth weight (VLBW) infants born 1978 – 1985 were followed-up to study survival and neurosensory outcomes into adulthood. In 2004-2005, 166 VLBW (birthweight <1500g) and 172 control ...
Read more
Study design:
Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births):
335
NTNU LBW Life
NTNU Low Birth Weight in a Lifetime Perspective Study
The NTNU Low Birth Weight in a Lifetime Perspective Study (NTNU LBW Life) comprises a group of preterm, very low birth weight (VLBW; ≤1500g) infants, a group of term born small for gestational age ...
Read more
Study design:
Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births):
121
PEP
Project Extreme Prematurity
The purpose of Project Extreme Prematurity (PEP) is to study short- and long-term health and well-being in children born extremely prematurely. As survival after extremely preterm (EPT) birth now ...
Read more
Study design:
Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births):
636
PIPARI
Development and Functioning of Very Low Birth Weight Infants from Infancy to School Age
PIPARI project (Development and Functioning of Very Low Birth Weight Infants from Infancy to School Age) is a multidisciplinary project, where a 6-year cohort of VLBW/VPT infants (born between ...
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Study design:
Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births):
255
Number of term-born control births included in cohort (live & still births):
188
POPS
Project On Preterm and Small for gestational age infants
The original POPS-cohort is a multi-center cohort of 1338 very preterm (<32 completed weeks of gestation) and/or very low birth weight (<1500 g) infants, 94% of all eligible infants who were ...
Read more
Study design:
Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births):
1336
RECAP-Registers
RECAP Preterm Nordic Registers
Data on all births in Norway, Sweden, Finland, and Denmark is recorded within Medical Birth Registers. As part of the RECAP Preterm project, data from across the gestational age range has been ...
Read more
Study design:
Other : Register
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births):
100000
Number of term-born control births included in cohort (live & still births):
9700000
WP9_Harmonised adult outcomes
Adult outcomes of Very Preterm (VPT) and/or Very Low Birth Weight (VLBW) of European cohorts participating in the RECAP Preterm consortium
#### Objectives:
1. To compare major outcomes, such as physical and mental health, quality of life, neurocognitive, personality, relational and economic outcomes in adulthood between VPT/VLBW and ...
ACTION
Accesso alle Cure e Terapie Intensive Ostetrico Neonatali (Access to Obstetrical and Neonatal Intensive Care)
| Study design: Cohort | |
| Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 2493 |
AYLS
Arvo Ylppö Longitudinal Study
| Study design: Cohort | |
| Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 1535 |
BEST/BLS
Bavarian Longitudinal Study Cohort
| Study design: Cohort | |
| Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 682 |
DNBC
Danish National Birth Cohort / Better Health in Generations
| Study design: Cohort | |
| Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 96834 |
EFGR in very preterm infants
Extreme Fetal Growth Restriction in very preterm infants
UA_EPIBEL
Antwerp University EPIBEL
| Study design: Cohort | |
| Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 525 |
EPICE
Effective Perinatal Intensive Care In Europe
| Study design: Cohort | |
| Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 10329 |
EPICE-PT
Effective Perinatal Intensive Care in Europe - Portugal
| Study design: Cohort | |
| Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 974 | |
| Number of term-born control births included in cohort (live & still births): 0 |
EPICure
EPICure
| Study design: Cohort | |
| Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 4004 |
EPICure 2
EPICure 2
| Study design: Cohort | |
| Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 3133 |
EPIPAGE 1
Étude épidémiologique sur les petits âges gestationnels
| Study design: Cohort | |
| Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 3581 |
EPIPAGE 2
Étude épidémiologique sur les petits âges gestationnels
| Study design: Cohort | |
| Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 5170 |
EPT RECAP
A comparative analysis of extremely preterm birth cohorts in Europe participating in the RECAP consortium
EST 2002-2003
EST 2002-2003 ELBWI, <29GW at 5y
| Study design: Cohort | |
| Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 80 |
EST 2007-2008
Very low gestational age infants born in Estonia in 2007-2008
| Study design: Cohort | |
| Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 360 |
ESTER
Preterm Birth and Early Life Programming of Adult Health and Disease
| Study design: Cohort | |
| Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 397 |
ETFOL
Treatment of extremely preterm infants: parents attitudes
| Study design: Cohort | |
| Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 477 |
EXPRESS
Extremely Preterm Infants in Sweden Study
| Study design: Cohort | |
| Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 1011 |
GNN
German Neonatal Network
| Study design: Cohort | |
| Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 15825 |
HAPP-e
Health of Adult People born Preterm – an e-cohort study
| Study design: Cohort |
HeSVA
Helsinki Study of Very Low Birth Weight Adults
| Study design: Cohort | |
| Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 335 |
NTNU LBW Life
NTNU Low Birth Weight in a Lifetime Perspective Study
| Study design: Cohort | |
| Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 121 |
PEP
Project Extreme Prematurity
| Study design: Cohort | |
| Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 636 |
PIPARI
Development and Functioning of Very Low Birth Weight Infants from Infancy to School Age
| Study design: Cohort | |
| Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 255 | |
| Number of term-born control births included in cohort (live & still births): 188 |
POPS
Project On Preterm and Small for gestational age infants
| Study design: Cohort | |
| Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 1336 |
RECAP-Registers
RECAP Preterm Nordic Registers
| Study design: Other : Register | |
| Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 100000 | |
| Number of term-born control births included in cohort (live & still births): 9700000 |
WP9_Harmonised adult outcomes
Adult outcomes of Very Preterm (VPT) and/or Very Low Birth Weight (VLBW) of European cohorts participating in the RECAP Preterm consortium