Studies

There are two types of studies presented here:
 ● An individual study - any epidemiological study (e.g. cohort, case control, cross sectional, etc.) conducted to better understand the distribution and determinants of health and disease.
 ● A harmonisation study - a research project harmonizing data across individual studies to answer specific research questions.

Studies

Acronym Name Description Type
ACTION Accesso alle Cure e Terapie Intensive Ostetrico Neonatali (Access to Obstetrical and Neonatal Intensive Care) Individual
AYLS Arvo Ylppö Longitudinal Study Individual
BEST/BLS Bavarian Longitudinal Study Cohort Individual
DNBC Danish National Birth Cohort / Better Health in Generations Individual
EFGR in very preterm infants Extreme Fetal Growth Restriction in very preterm infants Harmonisation
UA_EPIBEL Antwerp University EPIBEL Individual
EPICE Effective Perinatal Intensive Care In Europe Individual
EPICE-PT Effective Perinatal Intensive Care in Europe - Portugal Individual
EPICure EPICure Individual
EPICure 2 EPICure 2 Individual
EPIPAGE 1 Étude épidémiologique sur les petits âges gestationnels Individual
EPIPAGE 2 Étude épidémiologique sur les petits âges gestationnels Individual
EPT RECAP A comparative analysis of extremely preterm birth cohorts in Europe participating in the RECAP consortium Harmonisation
EST 2002-2003 EST 2002-2003 ELBWI, <29GW at 5y Individual
EST 2007-2008 Very low gestational age infants born in Estonia in 2007-2008 Individual
ESTER Preterm Birth and Early Life Programming of Adult Health and Disease Individual
ETFOL Treatment of extremely preterm infants: parents attitudes Individual
EXPRESS Extremely Preterm Infants in Sweden Study Individual
GNN German Neonatal Network Individual
HAPP-e Health of Adult People born Preterm – an e-cohort study Individual
HeSVA Helsinki Study of Very Low Birth Weight Adults Individual
NTNU LBW Life NTNU Low Birth Weight in a Lifetime Perspective Study Individual
PEP Project Extreme Prematurity Individual
PIPARI Development and Functioning of Very Low Birth Weight Infants from Infancy to School Age Individual
POPS Project On Preterm and Small for gestational age infants Individual
RECAP-Registers RECAP Preterm Nordic Registers Individual
WP9_Harmonised adult outcomes Adult outcomes of Very Preterm (VPT) and/or Very Low Birth Weight (VLBW) of European cohorts participating in the RECAP Preterm consortium Harmonisation

ACTION

Accesso alle Cure e Terapie Intensive Ostetrico Neonatali (Access to Obstetrical and Neonatal Intensive Care)

Read more
Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 2493
AYLS logo

AYLS

Arvo Ylppö Longitudinal Study

Read more
Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 1535
BEST/BLS logo

BEST/BLS

Bavarian Longitudinal Study Cohort

Read more
Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 682
DNBC logo

DNBC

Danish National Birth Cohort / Better Health in Generations

Read more
Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 96834

EFGR in very preterm infants

Extreme Fetal Growth Restriction in very preterm infants

UA_EPIBEL

Antwerp University EPIBEL

Read more
Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 525
EPICE logo

EPICE

Effective Perinatal Intensive Care In Europe

Read more
Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 10329
EPICE-PT logo

EPICE-PT

Effective Perinatal Intensive Care in Europe - Portugal

Read more
Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 974
Number of term-born control births included in cohort (live & still births): 0
EPICure logo

EPICure

EPICure

Read more
Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 4004
EPICure 2 logo

EPICure 2

EPICure 2

Read more
Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 3133

EPIPAGE 1

Étude épidémiologique sur les petits âges gestationnels

Read more
Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 3581
EPIPAGE 2 logo

EPIPAGE 2

Étude épidémiologique sur les petits âges gestationnels

Read more
Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 5170

EPT RECAP

A comparative analysis of extremely preterm birth cohorts in Europe participating in the RECAP consortium

EST 2002-2003

EST 2002-2003 ELBWI, <29GW at 5y

Read more
Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 80

EST 2007-2008

Very low gestational age infants born in Estonia in 2007-2008

Read more
Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 360
ESTER logo

ESTER

Preterm Birth and Early Life Programming of Adult Health and Disease

Read more
Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 397

ETFOL

Treatment of extremely preterm infants: parents attitudes

Read more
Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 477
EXPRESS logo

EXPRESS

Extremely Preterm Infants in Sweden Study

Read more
Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 1011
GNN logo

GNN

German Neonatal Network

Read more
Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 15825
HAPP-e logo

HAPP-e

Health of Adult People born Preterm – an e-cohort study

HeSVA logo

HeSVA

Helsinki Study of Very Low Birth Weight Adults

Read more
Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 335
NTNU LBW Life logo

NTNU LBW Life

NTNU Low Birth Weight in a Lifetime Perspective Study

Read more
Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 121
PEP logo

PEP

Project Extreme Prematurity

Read more
Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 636
PIPARI logo

PIPARI

Development and Functioning of Very Low Birth Weight Infants from Infancy to School Age

Read more
Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 255
Number of term-born control births included in cohort (live & still births): 188
POPS logo

POPS

Project On Preterm and Small for gestational age infants

Read more
Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 1336

RECAP-Registers

RECAP Preterm Nordic Registers

Read more
Study design: Other : Register
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 100000
Number of term-born control births included in cohort (live & still births): 9700000

WP9_Harmonised adult outcomes

Adult outcomes of Very Preterm (VPT) and/or Very Low Birth Weight (VLBW) of European cohorts participating in the RECAP Preterm consortium

ACTION

Accesso alle Cure e Terapie Intensive Ostetrico Neonatali (Access to Obstetrical and Neonatal Intensive Care)


Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 2493

AYLS

Arvo Ylppö Longitudinal Study


Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 1535
AYLS logo

BEST/BLS

Bavarian Longitudinal Study Cohort


Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 682
BEST/BLS logo

DNBC

Danish National Birth Cohort / Better Health in Generations


Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 96834
DNBC logo

EFGR in very preterm infants

Extreme Fetal Growth Restriction in very preterm infants


UA_EPIBEL

Antwerp University EPIBEL


Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 525

EPICE

Effective Perinatal Intensive Care In Europe


Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 10329
EPICE logo

EPICE-PT

Effective Perinatal Intensive Care in Europe - Portugal


Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 974
Number of term-born control births included in cohort (live & still births): 0
EPICE-PT logo

EPICure

EPICure


Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 4004
EPICure logo

EPICure 2

EPICure 2


Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 3133
EPICure 2 logo

EPIPAGE 1

Étude épidémiologique sur les petits âges gestationnels


Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 3581

EPIPAGE 2

Étude épidémiologique sur les petits âges gestationnels


Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 5170
EPIPAGE 2 logo

EPT RECAP

A comparative analysis of extremely preterm birth cohorts in Europe participating in the RECAP consortium


EST 2002-2003

EST 2002-2003 ELBWI, <29GW at 5y


Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 80

EST 2007-2008

Very low gestational age infants born in Estonia in 2007-2008


Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 360

ESTER

Preterm Birth and Early Life Programming of Adult Health and Disease


Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 397
ESTER logo

ETFOL

Treatment of extremely preterm infants: parents attitudes


Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 477

EXPRESS

Extremely Preterm Infants in Sweden Study


Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 1011
EXPRESS logo

GNN

German Neonatal Network


Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 15825
GNN logo

HAPP-e

Health of Adult People born Preterm – an e-cohort study


Study design: Cohort
HAPP-e logo

HeSVA

Helsinki Study of Very Low Birth Weight Adults


Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 335
HeSVA logo

NTNU LBW Life

NTNU Low Birth Weight in a Lifetime Perspective Study


Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 121
NTNU LBW Life logo

PEP

Project Extreme Prematurity


Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 636
PEP logo

PIPARI

Development and Functioning of Very Low Birth Weight Infants from Infancy to School Age


Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 255
Number of term-born control births included in cohort (live & still births): 188
PIPARI logo

POPS

Project On Preterm and Small for gestational age infants


Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 1336
POPS logo

RECAP-Registers

RECAP Preterm Nordic Registers


Study design: Other : Register
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 100000
Number of term-born control births included in cohort (live & still births): 9700000

WP9_Harmonised adult outcomes

Adult outcomes of Very Preterm (VPT) and/or Very Low Birth Weight (VLBW) of European cohorts participating in the RECAP Preterm consortium