Studies

There are two types of studies presented here:
 ● An individual study - any epidemiological study (e.g. cohort, case control, cross sectional, etc.) conducted to better understand the distribution and determinants of health and disease.
 ● A harmonisation study - a research project harmonizing data across individual studies to answer specific research questions.

Studies

Acronym Name Description Type
ACTION Accesso alle Cure e Terapie Intensive Ostetrico Neonatali (Access to Obstetrical and Neonatal Intensive Care) The ACTION cohort is a prospective area-based cohort started in 2003 in six Italian regions, ... Individual
AYLS Arvo Ylppö Longitudinal Study The AYLS is the Finnish arm of the Bavarian-Finnish Longitudinal Study. The original ... Individual
BEST/BLS Bavarian Longitudinal Study Cohort Phase I (1984-1990)
Four assessments (1985-1990) were carried out daily during the neonatal ...
Individual
EFGR in very preterm infants Extreme Fetal Growth Restriction in very preterm infants - Describe the prevalence and risk factors of infants with extremely severe fetal growth ... Harmonisation
UA_EPIBEL Antwerp University EPIBEL The original aim of the EPIBEL study was to determine mortality and morbidity at discharge from ... Individual
EPICE Effective Perinatal Intensive Care In Europe The EPICE project explored the use of evidence based practices for the care of very preterm ... Individual
EPICE-PT Effective Perinatal Intensive Care in Europe The EPICE project explored the use of evidence based practices for the care of very preterm ... Individual
EPICure EPICure The aim of the EPICure Study is to determine survival rates and long term health, developmental, ... Individual
EPICure 2 EPICure 2 EPICure 2 is a population study of health and development after birth before 27 weeks of ... Individual
EPIPAGE 1 Étude épidémiologique sur les petits âges gestationnels The EPIPAGE 1 study aimed to assess the outcome of very preterm (VPT) babies, to identify early ... Individual
EPIPAGE 2 Étude épidémiologique sur les petits âges gestationnels The EPIPAGE 2 study aims: 1. to describe short- and long-term outcomes in very and moderately ... Individual
EPT RECAP A comparative analysis of extremely preterm birth cohorts in Europe participating in the RECAP consortium #### Objectives: 1. Identify similarities and differences between European birth cohorts that ... Harmonisation
EST 2002-2003 EST 2002-2003 ELBWI, <29GW at 5y The aim of the study was to follow-up a population-based cohort of Extremely Low Birth Weight ... Individual
EST 2007-2008 Very low gestational age infants born in Estonia in 2007-2008 The aims of the conducted studies were to describe short-term and long-term outcome and health ... Individual
ESTER Preterm Birth and Early Life Programming of Adult Health and Disease The ESTER study focuses on preterm birth at any gestational age and maternal hypertension in ... Individual
ETFOL Treatment of extremely preterm infants: parents attitudes The ETFOL study is a prospective national follow up study of extremely preterm (EPT) babies born ... Individual
EXPRESS Extremely Preterm Infants in Sweden Study The EXPRESS Study (Extremely Preterm Infants in Sweden Study) is comprised of a group of ... Individual
GNN German Neonatal Network The German Neonatal Network (GNN) started patient enrolment on January the 1st 2009. The network ... Individual
HeSVA Helsinki Study of Very Low Birth Weight Adults Very low birth weight (VLBW) infants born 1978 – 1985 were followed-up to study survival and ... Individual
NTNU LBW Life NTNU Low Birth Weight in a Lifetime Perspective Study The NTNU Low Birth Weight in a Lifetime Perspective Study (NTNU LBW Life) comprises a group of ... Individual
PEP Project Extreme Prematurity The purpose of Project Extreme Prematurity (PEP) is to study short- and long-term health and ... Individual
POPS Project On Preterm and Small for gestational age infants The original POPS-cohort is a multi-center cohort of 1338 very preterm (<32 completed weeks of ... Individual
RECAP-Registers RECAP Preterm Nordic Registers Data on all births in Norway, Sweden, Finland, and Denmark is recorded within Medical Birth ... Individual

ACTION

Accesso alle Cure e Terapie Intensive Ostetrico Neonatali (Access to Obstetrical and Neonatal Intensive Care)

The ACTION cohort is a prospective area-based cohort started in 2003 in six Italian regions, five of them are eligible for inclusion in the RECAP collaboration (i.e. at least 1 follow-up wave). ...
Read more
Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 2493
AYLS logo

AYLS

Arvo Ylppö Longitudinal Study

The AYLS is the Finnish arm of the Bavarian-Finnish Longitudinal Study. The original participants in the AYLS study were 1535 infants admitted to neonatal wards in obstetric units or transferred ...
Read more
Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 1535
BEST/BLS logo

BEST/BLS

Bavarian Longitudinal Study Cohort

Phase I (1984-1990)
Four assessments (1985-1990) were carried out daily during the neonatal period, at discharge from hospital, at 5 months and 20 months (corrected for prematurity) and at 56 ...
Read more
Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 682

EFGR in very preterm infants

Extreme Fetal Growth Restriction in very preterm infants

- Describe the prevalence and risk factors of infants with extremely severe fetal growth restriction, using several definitions (weight thresholds, mortality risks, clinical opinion). - ...

UA_EPIBEL

Antwerp University EPIBEL

The original aim of the EPIBEL study was to determine mortality and morbidity at discharge from the hospital of a large population-based cohort of infants who were born at <27 weeks’ gestation. ...
Read more
Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 525
EPICE logo

EPICE

Effective Perinatal Intensive Care In Europe

The EPICE project explored the use of evidence based practices for the care of very preterm infants in 19 regions from 11 EU Member States. Very preterm infants born before 32 weeks of gestation ...
Read more
Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 10329
EPICE-PT logo

EPICE-PT

Effective Perinatal Intensive Care in Europe

The EPICE project explored the use of evidence based practices for the care of very preterm infants in 19 regions from 11 EU Member States. These regions cover more than 750000 deliveries per ...
Read more
Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 974
EPICure logo

EPICure

EPICure

The aim of the EPICure Study is to determine survival rates and long term health, developmental, educational and psychological outcomes across the lifespan following birth at 25 weeks of gestation ...
Read more
Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 4004
EPICure 2 logo

EPICure 2

EPICure 2

EPICure 2 is a population study of health and development after birth before 27 weeks of gestation during 2006. Evaluations were carried out at discharge (Clinical Data), at 3 years and we have ...
Read more
Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 3133

EPIPAGE 1

Étude épidémiologique sur les petits âges gestationnels

The EPIPAGE 1 study aimed to assess the outcome of very preterm (VPT) babies, to identify early predictors of health problems and developmental disorders, and to assess the impact of the ...
Read more
Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 3581
EPIPAGE 2 logo

EPIPAGE 2

Étude épidémiologique sur les petits âges gestationnels

The EPIPAGE 2 study aims: 1. to describe short- and long-term outcomes in very and moderately preterm babies and their families; 2. to study changes in medical practices and organization of care ...
Read more
Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 5170

EPT RECAP

A comparative analysis of extremely preterm birth cohorts in Europe participating in the RECAP consortium

#### Objectives: 1. Identify similarities and differences between European birth cohorts that are potentially important in the determination of baseline populations used in perinatal epidemiology ...

EST 2002-2003

EST 2002-2003 ELBWI, <29GW at 5y

The aim of the study was to follow-up a population-based cohort of Extremely Low Birth Weight (ELBW), extremely low gestational age children at 5 years. No follow-up studies had been carried out ...
Read more
Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 80

EST 2007-2008

Very low gestational age infants born in Estonia in 2007-2008

The aims of the conducted studies were to describe short-term and long-term outcome and health costs for very preterm (VPT) infants in Estonia, to identify risk factors for adverse outcome, and to ...
Read more
Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 360
ESTER logo

ESTER

Preterm Birth and Early Life Programming of Adult Health and Disease

The ESTER study focuses on preterm birth at any gestational age and maternal hypertension in pregnancy and gestational diabetes as exposures. The study comprises 1161 subjects born in the two ...
Read more
Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 397

ETFOL

Treatment of extremely preterm infants: parents attitudes

The ETFOL study is a prospective national follow up study of extremely preterm (EPT) babies born in 1994 – 1995 with birth weight below 1000 g or gestational age less than 28 weeks in Denmark. ...
Read more
Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 477
EXPRESS logo

EXPRESS

Extremely Preterm Infants in Sweden Study

The EXPRESS Study (Extremely Preterm Infants in Sweden Study) is comprised of a group of liveborn and stillborn extremely preterm (EPT) infants born at a gestational age of <27 weeks, recruited ...
Read more
Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 1011
GNN logo

GNN

German Neonatal Network

The German Neonatal Network (GNN) started patient enrolment on January the 1st 2009. The network is focussed on the long-term effects of genetic, clinical and social risk factors, the influence of ...
Read more
Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 15825
HeSVA logo

HeSVA

Helsinki Study of Very Low Birth Weight Adults

Very low birth weight (VLBW) infants born 1978 – 1985 were followed-up to study survival and neurosensory outcomes into adulthood. In 2004-2005, 166 VLBW (birthweight <1500g) and 172 control ...
Read more
Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 335
NTNU LBW Life logo

NTNU LBW Life

NTNU Low Birth Weight in a Lifetime Perspective Study

The NTNU Low Birth Weight in a Lifetime Perspective Study (NTNU LBW Life) comprises a group of preterm, very low birth weight (VLBW; ≤1500g) infants, a group of term born small for gestational age ...
Read more
Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 121
PEP logo

PEP

Project Extreme Prematurity

The purpose of Project Extreme Prematurity (PEP) is to study short- and long-term health and well-being in children born extremely prematurely. As survival after extremely preterm (EPT) birth now ...
Read more
Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 636
POPS logo

POPS

Project On Preterm and Small for gestational age infants

The original POPS-cohort is a multi-center cohort of 1338 very preterm (<32 completed weeks of gestation) and/or very low birth weight (<1500 g) infants, 94% of all eligible infants who were ...
Read more
Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 1338

RECAP-Registers

RECAP Preterm Nordic Registers

Data on all births in Norway, Sweden, Finland, and Denmark is recorded within Medical Birth Registers. As part of the RECAP Preterm project, data from across the gestational age range has been ...
Read more
Study design: Other : Register
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 100000
Number of term-born control births included in cohort (live & still births): 9700000

ACTION

Accesso alle Cure e Terapie Intensive Ostetrico Neonatali (Access to Obstetrical and Neonatal Intensive Care)


Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 2493

AYLS

Arvo Ylppö Longitudinal Study


Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 1535
AYLS logo

BEST/BLS

Bavarian Longitudinal Study Cohort


Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 682
BEST/BLS logo

EFGR in very preterm infants

Extreme Fetal Growth Restriction in very preterm infants


UA_EPIBEL

Antwerp University EPIBEL


Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 525

EPICE

Effective Perinatal Intensive Care In Europe


Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 10329
EPICE logo

EPICE-PT

Effective Perinatal Intensive Care in Europe


Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 974
EPICE-PT logo

EPICure

EPICure


Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 4004
EPICure logo

EPICure 2

EPICure 2


Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 3133
EPICure 2 logo

EPIPAGE 1

Étude épidémiologique sur les petits âges gestationnels


Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 3581

EPIPAGE 2

Étude épidémiologique sur les petits âges gestationnels


Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 5170
EPIPAGE 2 logo

EPT RECAP

A comparative analysis of extremely preterm birth cohorts in Europe participating in the RECAP consortium


EST 2002-2003

EST 2002-2003 ELBWI, <29GW at 5y


Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 80

EST 2007-2008

Very low gestational age infants born in Estonia in 2007-2008


Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 360

ESTER

Preterm Birth and Early Life Programming of Adult Health and Disease


Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 397
ESTER logo

ETFOL

Treatment of extremely preterm infants: parents attitudes


Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 477

EXPRESS

Extremely Preterm Infants in Sweden Study


Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 1011
EXPRESS logo

GNN

German Neonatal Network


Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 15825
GNN logo

HeSVA

Helsinki Study of Very Low Birth Weight Adults


Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 335
HeSVA logo

NTNU LBW Life

NTNU Low Birth Weight in a Lifetime Perspective Study


Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 121
NTNU LBW Life logo

PEP

Project Extreme Prematurity


Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 636
PEP logo

POPS

Project On Preterm and Small for gestational age infants


Study design: Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 1338
POPS logo

RECAP-Registers

RECAP Preterm Nordic Registers


Study design: Other : Register
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 100000
Number of term-born control births included in cohort (live & still births): 9700000