There are two types of studies presented here:
● An individual study - any epidemiological study (e.g. cohort, case control, cross sectional, etc.) conducted to better understand the distribution and determinants of health and disease.
● A harmonisation study - a research project harmonizing data across individual studies to answer specific research questions.
Studies
Acronym | Name | Description | Type |
---|---|---|---|
ACTION | Accesso alle Cure e Terapie Intensive Ostetrico Neonatali (Access to Obstetrical and Neonatal Intensive Care) | The ACTION cohort is a prospective area-based cohort started in 2003 in six Italian regions, ... | Individual |
AYLS | Arvo Ylppö Longitudinal Study | The AYLS is the Finnish arm of the Bavarian-Finnish Longitudinal Study. The original ... | Individual |
BEST/BLS | Bavarian Longitudinal Study Cohort | Phase I (1984-1990) Four assessments (1985-1990) were carried out daily during the neonatal ... |
Individual |
EFGR in very preterm infants | Extreme Fetal Growth Restriction in very preterm infants | - Describe the prevalence and risk factors of infants with extremely severe fetal growth ... | Harmonisation |
UA_EPIBEL | Antwerp University EPIBEL | The original aim of the EPIBEL study was to determine mortality and morbidity at discharge from ... | Individual |
EPICE | Effective Perinatal Intensive Care In Europe | The EPICE project explored the use of evidence based practices for the care of very preterm ... | Individual |
EPICE-PT | Effective Perinatal Intensive Care in Europe | The EPICE project explored the use of evidence based practices for the care of very preterm ... | Individual |
EPICure | EPICure | The aim of the EPICure Study is to determine survival rates and long term health, developmental, ... | Individual |
EPICure 2 | EPICure 2 | EPICure 2 is a population study of health and development after birth before 27 weeks of ... | Individual |
EPIPAGE 1 | Étude épidémiologique sur les petits âges gestationnels | The EPIPAGE 1 study aimed to assess the outcome of very preterm (VPT) babies, to identify early ... | Individual |
EPIPAGE 2 | Étude épidémiologique sur les petits âges gestationnels | The EPIPAGE 2 study aims: 1. to describe short- and long-term outcomes in very and moderately ... | Individual |
EPT RECAP | A comparative analysis of extremely preterm birth cohorts in Europe participating in the RECAP consortium | #### Objectives: 1. Identify similarities and differences between European birth cohorts that ... | Harmonisation |
EST 2002-2003 | EST 2002-2003 ELBWI, <29GW at 5y | The aim of the study was to follow-up a population-based cohort of Extremely Low Birth Weight ... | Individual |
EST 2007-2008 | Very low gestational age infants born in Estonia in 2007-2008 | The aims of the conducted studies were to describe short-term and long-term outcome and health ... | Individual |
ESTER | Preterm Birth and Early Life Programming of Adult Health and Disease | The ESTER study focuses on preterm birth at any gestational age and maternal hypertension in ... | Individual |
ETFOL | Treatment of extremely preterm infants: parents attitudes | The ETFOL study is a prospective national follow up study of extremely preterm (EPT) babies born ... | Individual |
EXPRESS | Extremely Preterm Infants in Sweden Study | The EXPRESS Study (Extremely Preterm Infants in Sweden Study) is comprised of a group of ... | Individual |
GNN | German Neonatal Network | The German Neonatal Network (GNN) started patient enrolment on January the 1st 2009. The network ... | Individual |
HeSVA | Helsinki Study of Very Low Birth Weight Adults | Very low birth weight (VLBW) infants born 1978 – 1985 were followed-up to study survival and ... | Individual |
NTNU LBW Life | NTNU Low Birth Weight in a Lifetime Perspective Study | The NTNU Low Birth Weight in a Lifetime Perspective Study (NTNU LBW Life) comprises a group of ... | Individual |
PEP | Project Extreme Prematurity | The purpose of Project Extreme Prematurity (PEP) is to study short- and long-term health and ... | Individual |
POPS | Project On Preterm and Small for gestational age infants | The original POPS-cohort is a multi-center cohort of 1338 very preterm (<32 completed weeks of ... | Individual |
RECAP-Registers | RECAP Preterm Nordic Registers | Data on all births in Norway, Sweden, Finland, and Denmark is recorded within Medical Birth ... | Individual |
ACTION
Accesso alle Cure e Terapie Intensive Ostetrico Neonatali (Access to Obstetrical and Neonatal Intensive Care)
AYLS
Arvo Ylppö Longitudinal Study
BEST/BLS
Bavarian Longitudinal Study Cohort
Four assessments (1985-1990) were carried out daily during the neonatal period, at discharge from hospital, at 5 months and 20 months (corrected for prematurity) and at 56 ...
EFGR in very preterm infants
Extreme Fetal Growth Restriction in very preterm infants
UA_EPIBEL
Antwerp University EPIBEL
EPICE
Effective Perinatal Intensive Care In Europe
EPICE-PT
Effective Perinatal Intensive Care in Europe
EPICure
EPICure
EPICure 2
EPICure 2
EPIPAGE 1
Étude épidémiologique sur les petits âges gestationnels
EPIPAGE 2
Étude épidémiologique sur les petits âges gestationnels
EPT RECAP
A comparative analysis of extremely preterm birth cohorts in Europe participating in the RECAP consortium
EST 2002-2003
EST 2002-2003 ELBWI, <29GW at 5y
EST 2007-2008
Very low gestational age infants born in Estonia in 2007-2008
ESTER
Preterm Birth and Early Life Programming of Adult Health and Disease
ETFOL
Treatment of extremely preterm infants: parents attitudes
EXPRESS
Extremely Preterm Infants in Sweden Study
GNN
German Neonatal Network
HeSVA
Helsinki Study of Very Low Birth Weight Adults
NTNU LBW Life
NTNU Low Birth Weight in a Lifetime Perspective Study
PEP
Project Extreme Prematurity
POPS
Project On Preterm and Small for gestational age infants
RECAP-Registers
RECAP Preterm Nordic Registers
ACTION
Accesso alle Cure e Terapie Intensive Ostetrico Neonatali (Access to Obstetrical and Neonatal Intensive Care)
Study design: Cohort | |
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 2493 |
AYLS
Arvo Ylppö Longitudinal Study
Study design: Cohort | |
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 1535 |
BEST/BLS
Bavarian Longitudinal Study Cohort
Study design: Cohort | |
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 682 |
EFGR in very preterm infants
Extreme Fetal Growth Restriction in very preterm infants
UA_EPIBEL
Antwerp University EPIBEL
Study design: Cohort | |
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 525 |
EPICE
Effective Perinatal Intensive Care In Europe
Study design: Cohort | |
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 10329 |
EPICE-PT
Effective Perinatal Intensive Care in Europe
Study design: Cohort | |
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 974 |
EPICure
EPICure
Study design: Cohort | |
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 4004 |
EPICure 2
EPICure 2
Study design: Cohort | |
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 3133 |
EPIPAGE 1
Étude épidémiologique sur les petits âges gestationnels
Study design: Cohort | |
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 3581 |
EPIPAGE 2
Étude épidémiologique sur les petits âges gestationnels
Study design: Cohort | |
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 5170 |
EPT RECAP
A comparative analysis of extremely preterm birth cohorts in Europe participating in the RECAP consortium
EST 2002-2003
EST 2002-2003 ELBWI, <29GW at 5y
Study design: Cohort | |
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 80 |
EST 2007-2008
Very low gestational age infants born in Estonia in 2007-2008
Study design: Cohort | |
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 360 |
ESTER
Preterm Birth and Early Life Programming of Adult Health and Disease
Study design: Cohort | |
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 397 |
ETFOL
Treatment of extremely preterm infants: parents attitudes
Study design: Cohort | |
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 477 |
EXPRESS
Extremely Preterm Infants in Sweden Study
Study design: Cohort | |
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 1011 |
GNN
German Neonatal Network
Study design: Cohort | |
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 15825 |
HeSVA
Helsinki Study of Very Low Birth Weight Adults
Study design: Cohort | |
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 335 |
NTNU LBW Life
NTNU Low Birth Weight in a Lifetime Perspective Study
Study design: Cohort | |
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 121 |
PEP
Project Extreme Prematurity
Study design: Cohort | |
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 636 |
POPS
Project On Preterm and Small for gestational age infants
Study design: Cohort | |
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 1338 |
RECAP-Registers
RECAP Preterm Nordic Registers
Study design: Other : Register | |
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births): 100000 | |
Number of term-born control births included in cohort (live & still births): 9700000 |