| 0 |
Perinatal Assessment
Overview
Data on pregnancy, delivery and care prior to transfer to the neonatal unit were collected from maternal obstetric records and the obstetric team. This included data on pregnancy, multiples, previous pregnancies, maternal medical history, fertility treatment, assessments and clinical investigations during pregnancy, pregnancy complications, medical treatment during pregnancy, hospital admissions during pregnancy, fetal health, congenital anomalies, pregnancy outcomes, labour and delivery, management of delivery, clinical indicators at birth, management of infant in delivery room, summary of mother's stay in maternity unit, and summary of hospital stay (for control infants not admitted to NICU).
Data on neonatal care were collected from neonatal records and the neonatology team including information on first 12 hours of life, details of all transfers between units, infant condition at admission to neonatal unit (including following subsequent transfer between neonatal units), neonatal morbidity, neonatal infections, screening tests and clinical assessments performed, medical care and treatments received, nutrition, growth, visits of parents to the unit, discharge from hospital, details of infant death, follow up after discharge.
A questionnaire was also completed by the maternity unit where delivery took place including details of staffing, maternity unit environment and on-site facilities, types of transport used for perinatal transport, management of the mother and management of the newborn.
-
Type of Data Collection Event
-
Perinatal
-
Start Date
-
1997
-
End Date
-
1998
-
Data sources
-
-
Questionnaires
-
Physical measures
-
Files
-
| # |
Name |
Description |
Size |
Actions |
|
No files could be found.
Participants
-
Age at Data Collection Event (years)
-
0
-
Corrected Age
-
|
VPT/VLBW Group |
Control Group |
| Survived |
|
|
| Invited |
|
|
| Assessed |
|
|
Perinatal Information
|
VPT/VLBW Group |
Control Group |
| Total Births |
4664
|
|
| Terminations of Pregnancy |
728
|
|
| Still Births |
786
|
|
| Live Births |
3150
|
|
| Admitted to NICU |
|
|
| Survived to Discharge |
|
|
|
Data on pregnancy, delivery and care prior to transfer to the neonatal unit were collected from maternal obstetric records and the obstetric team. This included data on pregnancy, multiples, ... |
1997 |
1998 |
| 1 |
2 Months After discharge
Overview
Two months after returning home from the hospital, the mother completed a questionnaire about their experiences of returning home. Data were collected on childcare arrangements, age at discharge, experiences of returning home, feeding, health concerns, confidence in caring for the participant, type of unit the participant was admitted to, satisfaction with care received by mother and infant, follow up consultations, therapies and medical treatments received, sleep, feeding and crying problems, visits to health professionals and hospital admissions. Information was also collected about the mother including maternal health, maternal sleeping and eating routine, maternal medication, living arrangements, employment, and support and help in the home received.
-
Supplementary Information
-
Full cohort assessed.
-
Start Date
-
1997
-
End Date
-
1998
-
Data sources
-
-
Files
-
| # |
Name |
Description |
Size |
Actions |
|
No files could be found.
Participants
-
Age at Data Collection Event (years)
-
0
|
VPT/VLBW Group |
Control Group |
| Survived |
2780
|
|
| Invited |
2780
|
|
| Assessed |
2070
|
488
|
|
Two months after returning home from the hospital, the mother completed a questionnaire about their experiences of returning home. Data were collected on childcare arrangements, age at discharge, ... |
1997 |
1998 |
| 2 |
9 Month Follow Up
Overview
At 9 months of age, questionnaires were sent to the mother and father of the participant to assess the health and development of the infant, history of hospital admissions and contact with medical professionals, experiences of the healthcare received by the infant, sleep, feeding, temperament and behavior, childcare, maternal physical and mental health, parental profession and employment information, reasons for changes in employment, daily life, paternal involvement in daily tasks, problems with older children, and household finances.
-
Supplementary Information
-
Full cohort assessed.
-
Start Date
-
1997
-
End Date
-
1999
-
Data sources
-
-
Files
-
| # |
Name |
Description |
Size |
Actions |
|
No files could be found.
Participants
-
Age at Data Collection Event (years)
-
0
|
VPT/VLBW Group |
Control Group |
| Survived |
2768
|
|
| Invited |
2764
|
|
| Assessed |
2091
|
465
|
|
At 9 months of age, questionnaires were sent to the mother and father of the participant to assess the health and development of the infant, history of hospital admissions and contact with medical ... |
1997 |
1999 |
| 3 |
1 Year Follow up
Overview
At 12 months, a short questionnaire was sent to the parents of participants to investigate the growth, health, medication usage, hospital admissions, sleep, nutrition and neurodevelopment of the infant. Additionally, questions were included about childcare arrangements, and changes in maternal employment and family situation since the previous follow up at 9 months of age.
-
Supplementary Information
-
Full cohort assessed.
-
Start Date
-
1998
-
End Date
-
1999
-
Data sources
-
-
Files
-
| # |
Name |
Description |
Size |
Actions |
|
No files could be found.
Participants
-
Age at Data Collection Event (years)
-
1
|
VPT/VLBW Group |
Control Group |
| Survived |
2768
|
|
| Invited |
2753
|
|
| Assessed |
2276
|
462
|
|
At 12 months, a short questionnaire was sent to the parents of participants to investigate the growth, health, medication usage, hospital admissions, sleep, nutrition and neurodevelopment of the ... |
1998 |
1999 |
| 4 |
2 Year Follow Up
Overview
At 2 years of age, the mother of the participant completed a questionnaire on childcare and living arrangements, feeding and nutrition, sleep, behavior, history of hospital admissions and visits to health professionals, concerns about the child's health. Additionally details were collected on maternal health, daily life, family and household structure, problems experienced with other children, parental education, profession, employment, time off due to health of child, and maternal social support.
A clinical examination was performed by a physician which included anthropometric measurements (height, weight, head circumference), a vision and hearing assessment, evaluation of neuromotor skills, and details of any other neurological or clinical symptoms. The behavior of the child during the assessment was also assessed by the physician. During the assessment visit, the person accompanying the child was interviewed about the infant's health, neuromotor skills, vision and hearing, medication usage, and specialist follow up care received.
-
Supplementary Information
-
Full cohort assessed.
Index Group Number Assessed: 2311/2374
Control Group Number Assessed: 445/415
-
Start Date
-
1999
-
End Date
-
2000
-
Data sources
-
-
Questionnaires
-
Cognitive measures
-
Physical measures
-
Files
-
| # |
Name |
Description |
Size |
Actions |
|
No files could be found.
Participants
-
Age at Data Collection Event (years)
-
2
|
VPT/VLBW Group |
Control Group |
| Survived |
2765
|
|
| Invited |
2719
|
|
| Assessed |
2311
|
445
|
|
At 2 years of age, the mother of the participant completed a questionnaire on childcare and living arrangements, feeding and nutrition, sleep, behavior, history of hospital admissions and visits ... |
1999 |
2000 |
| 5 |
3 Year Follow Up
Overview
At 3 years of age, parents of the participant completed a questionnaire about living and childcare arrangements, anthropometric measurements (height, weight, head circumference), health and medical history, vision and hearing problems, hospital admissions, medication and treatments received, visits to a psychologist, psychological and behavioral problems, sleep problems, feeding problems, global development, and parent-child activities. To investigate child behavior, parents also completed the Strengths and Difficulties Questionnaire (SDQ).
-
Supplementary Information
-
Full cohort assessed.
-
Start Date
-
2000
-
End Date
-
2001
-
Data sources
-
-
Questionnaires
-
Physical measures
-
Files
-
| # |
Name |
Description |
Size |
Actions |
|
No files could be found.
Participants
-
Age at Data Collection Event (years)
-
3
|
VPT/VLBW Group |
Control Group |
| Survived |
2761
|
|
| Invited |
2706
|
|
| Assessed |
2283
|
453
|
|
At 3 years of age, parents of the participant completed a questionnaire about living and childcare arrangements, anthropometric measurements (height, weight, head circumference), health and ... |
2000 |
2001 |
| 6 |
4 Year Follow Up
Overview
At 4 years of age, the parents of the participant completed a questionnaire on living arrangements, anthropometric measurements (height, weight, head circumference), general health, respiratory health, vision and hearing problems, hospital admissions, dental health, medication and treatments received, visits to psychologists, parent-child activities, adaptation to school, parental employment, and childcare arrangements. To investigate child behavior, parents also completed the Strengths and Difficulties Questionnaire (SDQ).
-
Supplementary Information
-
Full cohort assessed.
-
Start Date
-
2001
-
End Date
-
2002
-
Data sources
-
-
Questionnaires
-
Physical measures
-
Files
-
| # |
Name |
Description |
Size |
Actions |
|
No files could be found.
Participants
-
Age at Data Collection Event (years)
-
4
|
VPT/VLBW Group |
Control Group |
| Survived |
2758
|
|
| Invited |
2654
|
|
| Assessed |
2042
|
410
|
|
At 4 years of age, the parents of the participant completed a questionnaire on living arrangements, anthropometric measurements (height, weight, head circumference), general health, respiratory ... |
2001 |
2002 |
| 7 |
5 Year Follow Up
Overview
At 5 years of age, the parents of the participant completed a questionnaire about school, childcare arrangements, sleep, diet, and parent-child activities performed. Details of health and development, language and speech, allergies and family history of allergies, visits to health professionals, barriers to obtaining treatment, health insurance, and social care provision were also collected. Child behavior was assessed using the Strengths and Difficulties Questionnaire (SDQ). Parents also completed a questions on living arrangements, place of residence, maternal place of birth and citizenship, maternal education level, employment, maternal health, maternal smoking, other children in the household, daily activities, worries, and their feelings about the time following the birth of the participant.
A clinical examination was performed including anthropometric measurements (height, weight, head circumference), neurological examination (simplified version of examination from Touwen, 1979), assessment of cerebral palsy, cardiopulmonary examination, dental examination, skin examination, other problems, and visual acuity. Behavior during examination was also rated by the clinical assessor.
During the assessment visit, the person accompanying the participant was interviewed about living arrangements, respiratory health, skin health, neurological health, contact with health professionals, vision, hearing, hospital admission, other health problems, long term treatments and family medical history.
-
Supplementary Information
-
Full cohort assessed.
Index Group Number Assessed: 2180/2040
Control Group Number Assessed: 396/391
-
Start Date
-
2002
-
End Date
-
2003
-
Data sources
-
-
Questionnaires
-
Cognitive measures
-
Physical measures
-
Files
-
| # |
Name |
Description |
Size |
Actions |
|
No files could be found.
Participants
-
Age at Data Collection Event (years)
-
5
|
VPT/VLBW Group |
Control Group |
| Survived |
2756
|
|
| Invited |
2593
|
|
| Assessed |
2180
|
396
|
|
At 5 years of age, the parents of the participant completed a questionnaire about school, childcare arrangements, sleep, diet, and parent-child activities performed. Details of health and ... |
2002 |
2003 |
| 8 |
8 Year Follow Up
Overview
At 8 years of age, parents of the participants completed a questionnaire to assess anthropometric measurements (height, weight, head circumference), health, vision, hearing, language and speech development, coordination problems, visits to health professionals, hospital admissions, asthma and respiratory problems, medication, and barriers to accessing health services. Details on schooling, national test results, difficulties at school, special educational needs support, special aids and equipment were collected.
Additionally parents completed questions on the child's activities, social relationships and living arrangements, as well as details of other children, financial difficulties, parental employment and income. Parents also completed the Strengths and Difficulties Questionnaire (SDQ) to assess the behavior of the participant.
-
Supplementary Information
-
Full cohort assessed.
-
Start Date
-
2006
-
End Date
-
2006
-
Data sources
-
-
Questionnaires
-
Physical measures
-
Files
-
| # |
Name |
Description |
Size |
Actions |
|
No files could be found.
Participants
-
Age at Data Collection Event (years)
-
8
|
VPT/VLBW Group |
Control Group |
| Survived |
2753
|
|
| Invited |
2529
|
|
| Assessed |
1743
|
327
|
|
At 8 years of age, parents of the participants completed a questionnaire to assess anthropometric measurements (height, weight, head circumference), health, vision, hearing, language and speech ... |
2006 |
2006 |