Harmonisation Study / WP7 Harmonised child cohort data

WP7 Harmonised child cohort data - A comparative analysis of extremely preterm birth cohorts in Europe participating in the RECAP consortium

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Investigators Contacts
  • Jennifer Zeitlin
    INSERM UMR 1153
  • Helen Collins
    University of Leicester
  • Gonçalo Gonçalves
  • Andrei Morgan
    INSERM UMR 1153

Harmonisation Study Design

This study will make use of federated nodes containing perinatal and follow-up data for extremely preterm cohorts involved in the RECAP consortium. The ‘DataSHIELD’ package from R will be used to perform a distributed analysis. The study will be conducted in close collaboration with the team cataloguing and harmonising data for RECAP (Work Package 3 – WP3). Work is currently on-going by WP3 to examine the quality of available data for variables common to multiple cohorts within the RECAP project, including looking at numbers of missing data items for whole populations (by country) and subcategories (e.g. sex, survival status, birth weight category) of participants. In parallel, we will seek to identify differences in data definitions for compound outcomes (for example, “severe neurodevelopmental disability”) between cohorts to facilitate investigation and interpretation of morbidity outcomes at 2-3 years of age.

Studies Included

EPT RECAP Population