ETFOL - Treatment of extremely preterm infants: parents attitudes
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The ETFOL study is a prospective national follow up study of extremely preterm (EPT) babies born in 1994 – 1995 with birth weight below 1000 g or gestational age less than 28 weeks in Denmark.
A cohort of extremely prematurely born children and matched term controls was assessed at 5 years of age. The parents completed a questionnaire on their behavioral and social development. The purpose was to illuminate whether the children's general intellectual ability and parental sensitivity were associated with behavioral and social development.
A cohort of extremely prematurely born children and matched term controls was assessed at 5 years of age. The parents completed a questionnaire on their behavioral and social development. The purpose was to illuminate whether the children's general intellectual ability and parental sensitivity were associated with behavioral and social development.
Visit ETFOL
| Investigators | Contacts |
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Overview
- Acronym
- ETFOL
- Start Year
- 1994
- End Year
- 2000
- Follow Up Is Ongoing
- Year of Most Recent Data Collection
- 2000
- New Data Collection planned?
- No
Access
Access to external researchers or third parties neither provided nor foreseen.
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Supplementary Information
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Data from the ETFOL cohort can be requested from Rigsarkivet http://dda.dk/catalogue/33444?lang=en
Study Design
- Study design
- Cohort
- Number of Data Collection Events
- 5
- Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births)
- 477
- Supplementary information about number of participants
- Of the 477 index children 386 were born <28 completed weeks and 385 were born with a birth weight <1000 g. The control group included 79 children matched on age, sex, parental educational level and area of residence.
Marker Paper
1. Treatment of extremely preterm infants: parents attitudes. / Hansen, Bo Mølholm; Esbjørn, Barbara Hoff; Greisen, Gorm. I: Acta Paediatrica, Vol. 92, 2003, s.
2. Behavioral and social development of children born extremely premature: 5-year follow-up - NCBI
Scand J Psychol. 2004 Sep;45(4):285-92. Hoff B, Hansen BM, Munck H, Mortensen EL.
PUBMED 15281917
Timeline
ETFOL Cohort
All infants born in 1994-1995 extremely preterm or at very low birthweight, in Danish Hospitals with a neonatal unit (all 18 units participated).
Selection Criteria
- Countries
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- Denmark
- Geographical Area
- All of Denmark
- VPT/VLBW Group Inclusion Criteria
- Birth year 1994 – 1995, very low birth weight (< 1000g) or very low gestational age (< 28 completed weeks of gestation).
- Control Group Inclusion Criteria
- Babies born at term – control group.
- VPT/VLBW Group Exclusion Criteria
- none
- Control Group Exclusion Criteria
- none
Data Collection Events
| # | Name | Description | Start | End |
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| 0 |
Perinatal Assessment
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Data were collected prospectively from patient records by the study team using standardised forms and submitted to the project centre at Odense University Hospital. The cohort data was ... | 1994 | 1995 |
| 1 |
5 Month Follow Up
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At 5 months, information on weight, length/height and hear circumference was obtained from local doctors. | 1994 | 1996 |
| 2 |
12 Month Follow Up
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At 12 months information on weight, length/height and hear circumference was obtained from local doctors. | 1995 | 1997 |
| 3 |
2 Year Follow Up
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At 2 years of age, participants underwent a structured clinical examination at outpatient clinics in local pediatric departments. Data were collected about presence of cerebral palsy, epilepsy, ... | 1996 | 1997 |
| 4 |
5 Year Follow Up
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At 5 years of age, participants were assessed by a physician and a psychologist. A telephone interview with parents was used to collect details of parental education level. Parents also completed ... | 1999 | 2000 |