HAPP-e - Health of Adult People born Preterm – an e-cohort study
Networks
-
Datasets
-
Variables
-
The overall objective of this study was to assess the feasibility of recruiting and following up an e-cohort of adults born preterm to better understand the consequences of prematurity in adulthood.
The specific objectives were:
1. To assess the feasibility of methods and procedures for recruiting an open e-cohort based on voluntary participation.
2. To provide estimations of participation, characteristics of participants and quality of data collected.
Visit HAPP-e
Overview
- Acronym
- HAPP-e
- Start Year
- 2019
- Follow Up Is Ongoing
- Year of Most Recent Data Collection
- 2020
- Funding
- This project has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement No 733280.
Access
Access to external researchers or third parties provided or foreseen.
- Data (questionnaire-derived, measured...)
- Biosamples
- Other access
Study Design
- Study design
- Cohort
- Number of Data Collection Events
- 2
- Supplementary information about number of participants
- Open e-cohort (recruitment ongoing).
Timeline
HAPP-e Population
HAPP-e is an electronic cohort which is opened to all adults (aged 18 years old or more), born preterm (less than 37 weeks of gestation) and having both access to the Internet and an email address.
People from all over the world can participate. The questionnaires are available in English, French, Italian, German, Portuguese and Spanish.
Selection Criteria
- Geographical Area
- International
- VPT/VLBW Group Inclusion Criteria
- Adults (aged 18 years old or more), born preterm (<37 weeks of gestation) and having both access to the Internet and an email address.
- Control Group Inclusion Criteria
- Not applicable.
- Control Group Exclusion Criteria
- Supplementary Information
- People from all over the world can participate.
Data Collection Events
| # | Name | Description | Start | End |
|---|---|---|---|---|
| 0 |
HAPP-e Baseline
|
HAPP-e is an online survey based on questionnaire. The first questionnaire (baseline) addressed the following topics: * Circumstances and conditions of birth and past health condition; * ... | 2019-12 | |
| 1 |
HAPP-e Follow-up 1
|
The follow-up questionnaire focused on: * Current living conditions and changes since the baseline questionnaire; * Relationship with parents; * Stress - Current health (including a few ... | 2020-12 |