Individual Study / PEP

PEP - Project Extreme Prematurity


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Investigators Contacts
  • Maria Vollsæter
    Haukeland University Hospital
  • Maria Vollsæter
    Haukeland University Hospital

Overview

Acronym
PEP
Start Year
1999
Follow Up Is Ongoing
Year of Most Recent Data Collection
2012
New Data Collection planned?
Yes
Funding
Western Norway Health Authority

Access

Access to external researchers or third parties provided or foreseen.

Data (questionnaire-derived, measured...)
Biosamples
Other access

Study Design

Study design
Cohort
Number of Data Collection Events
5
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births)
636
Supplementary information about number of participants
636 children born 1999-2000 at GA < 28 weeks or BW 500-999 gram.
174 stillborn, two children (guardians) declined participation.
464 admitted to a NICU.
86 died in NICU.
376 discharged from the NICU.
Three died after discharge from the NICU.

Marker Paper

Markestad T, Kaaresen PI, Ronnestad A, Reigstad H, Lossius K, Medbo S, Zanussi G, Engelund IE, Skjaerven R, Irgens LM. Early death, morbidity, and need of treatment among extremely premature infants. Pediatrics. 2005;115(5):1289-98

PUBMED 15867037

Timeline

PEP Cohort

Selection Criteria
Countries
  • Norway
Geographical Area
All of Norway
VPT/VLBW Group Inclusion Criteria
Extremely preterm birth (gestational age <28 completed weeks of gestation or birthweight <1000 grams).
Control Group Inclusion Criteria
none
VPT/VLBW Group Exclusion Criteria
none
Control Group Exclusion Criteria
none
Supplementary Information
Control group included in subcohort study at 11 year follow up.
Data Collection Events
# Name Description Start End
0 Perinatal Assessment 1999 2000
1 2 Year Follow Up 2001 2002
2 5 Year Follow Up 2004 2005
3 11 Year Follow Up 2010 2012
4 11 Year Follow Up (Subcohort) 2010 2012