RECAP-Registers - RECAP Preterm Nordic Registers
Networks
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Datasets
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Variables
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Data on all births in Norway, Sweden, Finland, and Denmark is recorded within Medical Birth Registers. As part of the RECAP Preterm project, data from across the gestational age range has been harmonised across the 4 countries to allow analysis of outcomes relevant to preterm birth. For more information of the Nordic registers, please see the "Crash course in registry-based health research in the Nordic countries" and "RECAP_WP8_Register_Data_Harmonisation_Document_Feb2021" documents at the bottom of the page.
Visit RECAP-Registers
| Investigators | Contacts |
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Overview
- Acronym
- RECAP-Registers
- Start Year
- 1967
- End Year
- 2016
- Follow Up Is Ongoing
- Year of Most Recent Data Collection
- 2016
- New Data Collection planned?
- Uncertain
Access
Access to external researchers or third parties provided or foreseen.
- Data (questionnaire-derived, measured...)
- Biosamples
- Other access
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Supplementary Information
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Data access on individual basis by request from the PI's
Study Design
- Study design
- Other : Register
- Number of Data Collection Events
- 11
- Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births)
- 100000
- Number of term-born control births included in cohort (live & still births)
- 9,700,000
- Supplementary information about number of participants
- Includes all the births (preterm, term and post term) in the four countries, total number is approximately 11,000,000.
Marker Paper
Risnes et al. Mortality Among Young Adults Born Preterm and Early Term in 4 Nordic Nations. JAMA Netw Open. 2021;4(1):e2032779. https://pubmed.ncbi.nlm.nih.gov/33416885/
PUBMED 33416885
- Additional Publications
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- Persson et al. Gestational age and the risk of autism spectrum disorder in Sweden, Finland, and Norway: A cohort study. PLoS Med 2020:22;17(9):e1003207. https://pubmed.ncbi.nlm.nih.gov/32960896/
- Opdahl et al. Data resource profile: the Committee of Nordic Assisted Reproductive Technology and Safety (CoNARTaS) cohort. Int J Epidemiol. 2019 Nov 19:dyz228. doi: 10.1093/ije/dyz228. https://pubmed.ncbi.nlm.nih.gov/31742613/
- Tao W et al. Data Resource Profile: The Nordic Obesity Surgery Cohort (NordOSCo). Int J Epidemiol. 2017 Oct 1;46(5):1367-1367g. doi: 10.1093/ije/dyx199. https://pubmed.ncbi.nlm.nih.gov/29040667/
- Langhoff-Roos et al. The Nordic medical birth registers--a potential goldmine for clinical research. Acta Obstet Gynecol Scand. 2014 Feb;93(2):132-7. doi: 10.1111/aogs.12302. https://pubmed.ncbi.nlm.nih.gov/24237585/
Timeline
Populations
Medical Birth Register for Norway. Data Available 1967-2016
Selection Criteria
- Countries
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- Norway
- Geographical Area
- All of Norway
- VPT/VLBW Group Inclusion Criteria
- All children born between 1967-2016 in Norway, n approximately 2 850 000.
- VPT/VLBW Group Exclusion Criteria
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Data Collection Events
| # | Name | Description | Start | End |
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| 0 |
Medical Birth Register (Norway)
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1967 | 2016 | |
| 1 |
Hospital Discharge Register, Norway
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Includes selected diagnoses for specialty care inpatients and outpatients. | 2008 | 2016 |
Medical Birth Register data from Sweden. Data available from 1974.
Selection Criteria
- Countries
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- Sweden
- Geographical Area
- All of Sweden
- VPT/VLBW Group Inclusion Criteria
- All children born between 1974-2016 in Sweden, n approximately 4 400 000.
- VPT/VLBW Group Exclusion Criteria
- .
Data Collection Events
| # | Name | Description | Start | End |
|---|---|---|---|---|
| 0 |
Medical Birth Register (Sweden)
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1974 | 2016 | |
| 1 |
Hospital Discharge Register, Sweden, inpatient diagnoses
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Includes selected diagnoses for specialty care inpatients. | 1988 | 2016 |
| 2 |
Hospital Discharge Register, Sweden, outpatient diagnoses
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Includes selected diagnoses for specialty care outpatients. | 2001 | 2016 |
Medical Birth Register data from Finland. Data available from 1987-2016
Selection Criteria
- Countries
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- Finland
- Geographical Area
- All of Finland
- VPT/VLBW Group Inclusion Criteria
- All children born between 1987-2016 in Finland, n approximately 1 700 000.
- VPT/VLBW Group Exclusion Criteria
- .
Data Collection Events
| # | Name | Description | Start | End |
|---|---|---|---|---|
| 0 |
Medical Birth Register (Finland)
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1987 | 2016 | |
| 1 |
Hospital Discharge Register, Finland, inpatient diagnoses
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Includes selected diagnoses for specialty care inpatients. | 1987 | 2016 |
| 2 |
Hospital Discharge Register, Finland, outpatient diagnoses
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Includes selected diagnoses for specialty care outpatients. | 1998 | 2016 |
Medical Birth Register data from Denmark. Data available from 1973 to 2016.
Selection Criteria
- Countries
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- Denmark
- Geographical Area
- All of Denmark
- VPT/VLBW Group Inclusion Criteria
- All children born between 1973-2016 in Denmark, n approximately 2 650 000.
- VPT/VLBW Group Exclusion Criteria
- .
Data Collection Events
| # | Name | Description | Start | End |
|---|---|---|---|---|
| 0 |
Medical Birth Register (Denmark)
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1973 | 2016 | |
| 1 |
Hospital Discharge Register, Denmark, inpatient diagnoses
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Includes all diagnoses for specialty care inpatients. | 1977 | 2016 |
| 2 |
Hospital Discharge Register, Denmark, outpatient diagnoses
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Includes selected diagnoses for specialty care outpatients. | 1995 | 2016 |