SwissNeoNet - Swiss Neonatal Network 2000-2024
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Datasets
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In recent decades, technical advances and improved medical treatment have resulted in better perinatal care, leading to significantly higher survival rates in infants born below 32 weeks of gestational age (GA). Approximately 850 births per year (1% of all births in Switzerland) are concerned and their number is steadily growing. 10-15% of these high-risk newborns die at or soon after birth and 10–15% of the surviving infants develop severe disability such as cerebral palsy, mental retardation, or severe sensory impairment.
The chief aim of the Swiss Neonatal Network & Follow-Up Group (SwissNeoNet) is to maintain and/or improve the quality and safety of medical care for high-risk newborn infants and their families in Switzerland through a coordinated program of research, education and collaborative audit.
In support of its aim,SwissNeoNet operates a registry which collects data on all infants born between 22+0 to 31+6w GA in 20 neonatal intensive- and intermediate-care units across Switzerland. The data in SwissNeoNet encompass information about the care and outcomes of these infants, including antenatal and maternal characteristics, perinatal factors, and long-term outcomes at 2 years and 5 years of age for children born extremely preterm (EPT, 22+0 to 27+6w GA).
In this version of SwissNeoNet, data on infants born from 1 January 2000 up to 31 December 2024 are available. New data collected in each subsequent year will be uploaded as separate projects.
Visit SwissNeoNet
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Overview
- Acronym
- SwissNeoNet
- Start Year
- 2000
- End Year
- 2024
- Follow Up Is Ongoing
- Year of Most Recent Data Collection
- 2024
Access
Access to external researchers or third parties neither provided nor foreseen.
Study Design
- Study design
- Other : Registry
- Number of Data Collection Events
- 3
- Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births)
- 21515
Marker Paper
https://pm.amegroups.org/article/view/6583
Timeline
Swiss Neonatal Network 2000-2024
The SwissNeoNet registry collects data on all infants born between 22+0 and 31+6 weeks' GA in 20 neonatal intensive- and intermediate-care units across Switzerland. The data in SwissNeoNet encompass information about the care and outcomes of these infants, including antenatal and maternal characteristics, perinatal factors, and long-term outcomes at 2 years and 5 years of age for children born extremely preterm (EPT, 22+0 to 27+6 weeks' GA).
This population includes all liveborn infants who were admitted to a participating Swiss neonatal care unit from 1 January 2000 to 31 December 2024.
Selection Criteria
- Countries
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- Switzerland
- Geographical Area
- National
- VPT/VLBW Group Inclusion Criteria
- Liveborn infants born between 22+0 to 31+6w GA OR below 1500g birthweight; either inborn OR outborn and admitted to a unit within 28 days after birth
- VPT/VLBW Group Exclusion Criteria
- Stillborn infants, infants born <22w GA
Data Collection Events
| # | Name | Description | Start | End |
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| 0 |
MNDS SwissNeoNet 2000-2024
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The Minimal Neonatal Dataset (MNDS) contains all information on antenatal, maternal, and perinatal characteristics, interventions, and outcomes for each infant up to his or her final discharge ... | 2000-01 | 2024-12 |
| 1 |
FU2 SwissNeoNet 2000-2024
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The Follow-Up 2 (FU2) dataset contains information on growth measures, healthcare utilization/interventions given, and neurodevelopmental outcomes of EPT children at approx. 2 years of age. This ... | 2000-01 | 2024-12 |
| 2 |
FU5 SwissNeoNet 2000-2024
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The Follow-Up 5 (FU5) dataset contains information on growth measures, healthcare utilization/interventions given, and neurodevelopmental outcomes of EPT children at approx. 5 years of age. This ... | 2000-01 | 2024-12 |