WP9_Harmonised adult outcomes - Adult outcomes of Very Preterm (VPT) and/or Very Low Birth Weight (VLBW) of European cohorts participating in the RECAP Preterm consortium
Networks
-
Datasets
-
Variables
-
#### Objectives:
1. To compare major outcomes, such as physical and mental health, quality of life, neurocognitive, personality, relational and economic outcomes in adulthood between VPT/VLBW and term born participants across European cohort studies.
1. To investigate the role of other neonatal (e.g.,small for gestational age, multiple birth, neonatal complications) and social (e.g., parental education) factors on these outcomes.
1. To determine whether outcomes are universal or vary with contextual setting (i.e., countries).
| Investigators | Contacts |
|---|---|
|
|
Harmonisation Study Design
This study makes use of federated nodes containing harmonised data on perinatal, and adult outcomes for VPT/VLBW cohorts involved in the RECAP-WP9 consortium. The ‘DataSHIELD’ package from R allows to perform distributed analyses by pooling summary data from the adult VPT/VLBW cohort studies involved in each topic.
Other investigators
- Marina Mendonça, Robert Eves, Eva Liu, Yanyan Ni, Nicole Baumann - University of Warwick
- Reka Sexty - University of Bonn
- Rachel Robinson, Kati Heinonen - University of Helsinki
- Petteri Hovi, Marjaana Tikanmaki - Finnish Institute for Health and Welfare
- Kari-Anne I. Evensen, Ingrid Husby Hollund - Norwegian University of Science and Technology
- Sylvia van der Pal, Paula van Dommelen - Netherlands Organization for applied scientific research
- Stavros Petrou, Corneliu Bolbocean - University of Oxford
Studies Included
Individual Studies
| Acronym | Name | Participants | Countries |
|---|
Harmonisation Studies
| Acronym | Name |
|---|
Datasets
| Name | Type | Variables |
|---|
WP9 Adult Outcomes Population
Prospective longitudinal cohort studies of VPT/VLBW (<32 weeks gestation or <1500g) adult participants who had completed an adult outcome of interest, at a mean age of 18 years or older, were eligible for inclusion.