ACTION 2y Parental Quest Dataset
Networks
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Variables
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Associated study
- Italy
| Acronym | ACTION |
|---|---|
| Name | Accesso alle Cure e Terapie Intensive Ostetrico Neonatali (Access to Obstetrical and Neonatal Intensive Care) |
| Study design | Cohort |
| Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births) | 2493 |
| Countries |
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Population
ACTION Cohort
The ACTION population comprises all births in FVG, Tuscany, Marche and Lazio. Births in all hospitals with NICUs plus transferred infants in Calabria and Lombardy.
Data Collection Event
2 Year Follow Up
At 2 years of age, participants attended a hospital examination to assess general health. This included assessment of health conditions, medication usage at time of follow up, vaccination history, surgical history and hospital admissions since discharge from neonatal unit, and respiratory infections since discharge. Participants also underwent screening for neurosensory impairments including psychomotor functioning, presence of CP, visual and hearing function and use of aids.
Parents of the participant completed a postal questionnaire consisting of the Parent Report of Children's Abilities Revised (PARCA-R) and the Bates Infant Characteristics Questionnaire (ICQ) to assess the development and temperament of the child.
A structured telephone interview with the parents of the participant was carried out to collect information on parental education and profession, maternal physical and mental health, difficulties related to the birth of the preterm child, information about family life, child health, sleep, feeding, and stressful life events since the birth of the child (such as death or disease of loved ones, divorce, job loss, economical and legal problems). The General Health Questionnaire 12 item version (GHQ-12) was used to measure current maternal mental health at the time of interview.
Four participating hospitals also used the BSID-II as a routine screening tool. This data was also used in the validation process for the Italian translation of the PARCA-R.
Parents of the participant completed a postal questionnaire consisting of the Parent Report of Children's Abilities Revised (PARCA-R) and the Bates Infant Characteristics Questionnaire (ICQ) to assess the development and temperament of the child.
A structured telephone interview with the parents of the participant was carried out to collect information on parental education and profession, maternal physical and mental health, difficulties related to the birth of the preterm child, information about family life, child health, sleep, feeding, and stressful life events since the birth of the child (such as death or disease of loved ones, divorce, job loss, economical and legal problems). The General Health Questionnaire 12 item version (GHQ-12) was used to measure current maternal mental health at the time of interview.
Four participating hospitals also used the BSID-II as a routine screening tool. This data was also used in the validation process for the Italian translation of the PARCA-R.