EPICE 2y Dataset
Networks
-
Variables
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Associated study
- Belgium
- Denmark
- Estonia
- France
- Germany
- Italy
- Netherlands
- Portugal
- United Kingdom
- Sweden
- Poland
| Acronym | EPICE |
|---|---|
| Name | Effective Perinatal Intensive Care In Europe |
| Study design | Cohort |
| Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births) | 10329 |
| Countries |
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Population
EPICE Cohort
All live and still births between 22+0 and 31+6 weeks in maternity units in 19 regions in 11 European countries during study period (April 2011-September 2012) .
Data Collection Event
2 Year Follow Up
EPICE participants were followed up at 2 years of corrected age via a postal questionnaire completed by parents. Neurodevelopment was assessed using the Parent Report of Children's Abilities - Revised for preterm infants (PARCA-R) questionnaire, except in France where the Ages and Stages Questionnaire (ASQ) was used. Additional questions were included on walking, feeding, sight and hearing. Parents also completed questions on the health of the child, healthcare resource utilisation and follow up care. Height, weight and head circumference were provided based on the latest measurements recorded by a health professional in the child's health record book. Additionally, details on breastfeeding, living arrangements, family structure, childcare and socioeconomic status and demographic information were collected.