Collected Dataset / EPICE-PT Perinatal Dataset

EPICE-PT Perinatal Dataset

Networks -
Variables -

Associated study

Acronym EPICE-PT
Name Effective Perinatal Intensive Care in Europe
Study design Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births) 974
Countries
  • Portugal

Population

EPICE Portugal Cohort

The EPICE-PT cohort comprised all live and still born VPT infants in two regions of Portugal. All public maternity and neonatal intensive care units in Lisbon and Tagus Valley Region (8 units) and Northern Region (9 units), plus 3 private units within the Lisbon and Tagus Valley Region were included. Units with 10 or more admissions of very preterm newborns, in the first 48 hours postpartum were eligible to take part in the study.

Data Collection Event

Perinatal Assessment

Perinatal data were collected from obstetric and neonatal medical records using a pretested standardised questionnaire as part of the main EPICE study.
Maternal and infant health characteristics (e.g. maternal complications), maternal and infant socioeconomic status and demographic characteristics, maternal obstetric and medical history (e.g. number of previous births), details of pregnancy and delivery and interventions during pregnancy, labour and postnatal treatment, infant health and medical treatment (general health, BPD, Brain lesions, infections, ROP, NEC, PDA, congenital anomalies, other morbidities; death in utero) and nutrition during the neonatal period (e.g. breastfeeding) were recorded. Data were also collected on hospitalisation history and outcomes at death/discharge. Additionally, data were collected on the characteristics and practices of health care services (e.g. maternity and neonatal units) such as policies, protocols, unit activity levels decision making processes etc.