EPIPAGE1 5y Home Quest Dataset
Networks
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Variables
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Associated study
- France
| Acronym | EPIPAGE 2 |
|---|---|
| Name | Étude épidémiologique sur les petits âges gestationnels |
| Study design | Cohort |
| Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births) | 5170 |
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Population
EPIPAGE 2 Cohort
Population based cohort - All births (live births, still births and terminations of pregnancy) in maternity units within the regions.
Data Collection Event
5.5 Year Follow Up
At 5 years of age, participants underwent a clinical and psychological examination, and parents completed questionnaires. A clinical assessment was performed by a physician including evaluation of respiratory health, neurological health, skin health, hearing and vision problems, other health problems, medication, anthropometric measurements (height, weight, head, brachial, hip, waist circumference, and thigh diameter), blood pressure measurements, visual acuity, dental examination, and a neuromotor examination including assessment of cerebral palsy and classification of motor function using the Gross motor Function Classification System (GMFCS). The Movement Assessment Battery for Children Second Edition (Movement ABC-2) was also administered to assess motor development. During the examination, the mother was asked about obstetric history since participant's birth, and parental chronic disease.
A neurodevelopmental assessment was performed by a trained neuropsychologist including the Weschler Preschool and Primary Scale of Intelligence Fourth Edition (WPPSI-IV), and NEPSY-II. Child behavior was evaluated during neurodevelopmental assessment.
Parents completed a questionnaire on school, special educational needs support, health and development, sleep, hospital admissions, visits to health professionals, follow up care with specialists, satisfaction with child's healthcare, barriers to accessing healthcare, health related expenses and time off work due to health problems of participant. Parents were also asked about living arrangements, languages spoken in the home, other children in the home, employment, and level of education. Standardised questionnaires were completed by the parents to assess maternal health (Short Form-36; SF-36), diet (Child Eating Behaviour Questionnaire; CEBQ), behaviour (Strengths and Difficulties Questionnaire; SDQ), autism symptoms (Social Communication Questionnaire; SCQ), and health-related quality of life (Pediatric Quality of Life Inventory; PedsQL). In addition the assessment team completed the Home Observation Measurement of the Environment (HOME) questionnaire through observation of parent-child interactions and the home environment, and interview with parents. For children unable to come to the clinical assessment, a self-administered questionnaire was sent to the parents. A group of term born children, initially included in the Elfe cohort, was invited to the clinical and neuropsychological assessment.
A neurodevelopmental assessment was performed by a trained neuropsychologist including the Weschler Preschool and Primary Scale of Intelligence Fourth Edition (WPPSI-IV), and NEPSY-II. Child behavior was evaluated during neurodevelopmental assessment.
Parents completed a questionnaire on school, special educational needs support, health and development, sleep, hospital admissions, visits to health professionals, follow up care with specialists, satisfaction with child's healthcare, barriers to accessing healthcare, health related expenses and time off work due to health problems of participant. Parents were also asked about living arrangements, languages spoken in the home, other children in the home, employment, and level of education. Standardised questionnaires were completed by the parents to assess maternal health (Short Form-36; SF-36), diet (Child Eating Behaviour Questionnaire; CEBQ), behaviour (Strengths and Difficulties Questionnaire; SDQ), autism symptoms (Social Communication Questionnaire; SCQ), and health-related quality of life (Pediatric Quality of Life Inventory; PedsQL). In addition the assessment team completed the Home Observation Measurement of the Environment (HOME) questionnaire through observation of parent-child interactions and the home environment, and interview with parents. For children unable to come to the clinical assessment, a self-administered questionnaire was sent to the parents. A group of term born children, initially included in the Elfe cohort, was invited to the clinical and neuropsychological assessment.