Collected Dataset / EPIPAGE1 Perinatal Institution Quest Dataset

EPIPAGE1 Perinatal Institution Quest Dataset

Networks -
Variables -

Associated study

Acronym EPIPAGE 1
Name Étude épidémiologique sur les petits âges gestationnels
Study design Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births) 3581
Countries
  • France

Population

EPIPAGE 1 Cohort

Population based cohort consisting of all births (live births, still births and termination of pregnancy) in all maternity units in the 9 regions.

Data Collection Event

Perinatal Assessment

Data on pregnancy, delivery and care prior to transfer to the neonatal unit were collected from maternal obstetric records and the obstetric team. This included data on pregnancy, multiples, previous pregnancies, maternal medical history, fertility treatment, assessments and clinical investigations during pregnancy, pregnancy complications, medical treatment during pregnancy, hospital admissions during pregnancy, fetal health, congenital anomalies, pregnancy outcomes, labour and delivery, management of delivery, clinical indicators at birth, management of infant in delivery room, summary of mother's stay in maternity unit, and summary of hospital stay (for control infants not admitted to NICU).

Data on neonatal care were collected from neonatal records and the neonatology team including information on first 12 hours of life, details of all transfers between units, infant condition at admission to neonatal unit (including following subsequent transfer between neonatal units), neonatal morbidity, neonatal infections, screening tests and clinical assessments performed, medical care and treatments received, nutrition, growth, visits of parents to the unit, discharge from hospital, details of infant death, follow up after discharge.

A questionnaire was also completed by the maternity unit where delivery took place including details of staffing, maternity unit environment and on-site facilities, types of transport used for perinatal transport, management of the mother and management of the newborn.