Collected Dataset / ETFOL Perinatal Neonatal Dataset

ETFOL Perinatal Neonatal Dataset

Networks -
Variables -

Associated study

Acronym ETFOL
Name Treatment of extremely preterm infants: parents attitudes
Study design Cohort
Number of very preterm (VPT) and/or very low birthweight (VLBW) births included in cohort (live & still births) 477
  • Denmark


ETFOL Cohort

All infants born in 1994-1995 extremely preterm or at very low birthweight, in Danish Hospitals with a neonatal unit (all 18 units participated).

Data Collection Event

Perinatal Assessment

Data were collected prospectively from patient records by the study team using standardised forms and submitted to the project centre at Odense University Hospital. The cohort data was cross-linked with the Danish Medical Birth Register resulting in the identification of a number of additional infants; data were collected retrospectively for these infants. Data were collected on pregnancy course, labour and delivery, whether active care was received, physical characteristics at birth, clinical indicators, respiratory support, neonatal morbidity, developmental care, neuroimaging, brain lesions, discharge, and mortality.