REsearch on Children and Adults born Preterm
Studies
26
Datasets
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Variables
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The overall aim of this project is to improve the health, development and quality of life of children and adults born very preterm
(VPT, < 32 weeks of gestation) or very low birth weight (VLBW, < 1500g birth weight). VPT/VLBW births constitute fewer than
2% of all births across Europe, but they account for up to half of perinatal and infant deaths, children with impairments and
disabilities and more than a third of the health and educational budgets for children.
Summary Statistics
No graphics available
Individual Studies
| Acronym | Name | Study design | Participants | Countries |
|---|---|---|---|---|
| ACTION | Accesso alle Cure e Terapie Intensive Ostetrico Neonatali (Access to Obstetrical and Neonatal Intensive Care) | Cohort | 2,493 | Italy |
| AYLS | Arvo Ylppö Longitudinal Study | Cohort | 1,535 | Finland |
| BEST/BLS | Bavarian Longitudinal Study Cohort | Cohort | 682 | Germany |
| UA_EPIBEL | Antwerp University EPIBEL | Cohort | 525 | Belgium |
| EPICure | EPICure | Cohort | 4,004 | United Kingdom , Ireland |
| EPICure 2 | EPICure 2 | Cohort | 3,133 | United Kingdom |
| EPIPAGE 1 | Étude épidémiologique sur les petits âges gestationnels | Cohort | 3,581 | France |
| EPIPAGE 2 | Étude épidémiologique sur les petits âges gestationnels | Cohort | 5,170 | France |
| EST 2002-2003 | EST 2002-2003 ELBWI, <29GW at 5y | Cohort | 80 | Estonia |
| EST 2007-2008 | Very low gestational age infants born in Estonia in 2007-2008 | Cohort | 360 | Estonia |
| ESTER | Preterm Birth and Early Life Programming of Adult Health and Disease | Cohort | 397 | Finland |
| ETFOL | Treatment of extremely preterm infants: parents attitudes | Cohort | 477 | Denmark |
| EXPRESS | Extremely Preterm Infants in Sweden Study | Cohort | 1,011 | Sweden |
| HeSVA | Helsinki Study of Very Low Birth Weight Adults | Cohort | 335 | Finland |
| NTNU LBW Life | NTNU Low Birth Weight in a Lifetime Perspective Study | Cohort | 121 | Norway |
| PEP | Project Extreme Prematurity | Cohort | 636 | Norway |
| POPS | Project On Preterm and Small for gestational age infants | Cohort | 1,336 | Netherlands |
| EPICE | Effective Perinatal Intensive Care In Europe | Cohort | 10,329 | Belgium , Denmark , Estonia , France , Germany , Italy , Netherlands , Portugal , United Kingdom , Sweden , Poland |
| EPICE-PT | Effective Perinatal Intensive Care in Europe - Portugal | Cohort | 974 | Portugal |
| GNN | German Neonatal Network | Cohort | 15,825 | Germany |
| PIPARI | Development and Functioning of Very Low Birth Weight Infants from Infancy to School Age | Cohort | 255 | Finland |
| RECAP-Registers | RECAP Preterm Nordic Registers | Other | 100,000 | Norway , Denmark , Sweden , Finland |
| DNBC | Danish National Birth Cohort / Better Health in Generations | Cohort | 96,834 | Denmark |
| HAPP-e | Health of Adult People born Preterm – an e-cohort study | Cohort |
Harmonisation Studies
| Acronym | Name |
|---|---|
| EFGR in very preterm infants | Extreme Fetal Growth Restriction in very preterm infants |
| WP7 Harmonised child cohort data | A comparative analysis of extremely preterm birth cohorts in Europe participating in the RECAP consortium |